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Friday, December 12, 2014

Specialists

When you have a child with a special need, there are always specialist to be seen.  Today was a long day at the university hospital.  I have to say the specialist Maria sees are some of the best.  Today included an MRI (gotta admit I always dread those, ever since I got the devestating news last February about Maria's spine).  Then we went to visit with the neurosurgeon...the nice one with good people skills.....he asked us several questions, took a look at Maria's back, made sure we knew what to look for with a shunt malfunction and then gave us the news.....we don't have to see him for a whole year!  Gotta admit this made me want to celebrate.  I did talk to him a little bit about little sister's condition and wanting him to see her when she comes home.  He was very agreeable and explained more about little sister's condition.  Then we headed up to check in at the pediatric specialty clinic, just letting them know we were there.  We then went to get an ultrasound of Maria's kidneys and bladder, followed by a urodynamics test being done.  Then back to the specialty clinic to see Maria's urologist.  Again we answered several questions and talked about where Maria was.  Maria has a low pressure point in her bladder and weak muscles that control her bladder.....this is actually a good thing for her, it means that her kidneys should stay healthy, it is highly unlikely that urine from her bladder would go back into her kidneys (which does happen with some kids who have SB).  He is happy with how she is doing and we don't have to see him for a whole year too!  So great news today and we celebrated with Maria's favorite.....ice cream.


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