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Wednesday, March 25, 2015

Maria update

Not long after coming home from visiting little sister, we had an exciting day at Maria's school.  Our state adaptive sports guy (Mike) brought Maria's new racing chair for track to her school.  He met with her coaches and went over the chair with them. Maria got to learn how to transfer into it.  It is a beautiful chair and we are so excited to have it.  Mike taught Maria how to turn it, which she got down very quickly.  He suggested she focus on the 100 meter race this year since the middle school only has a dirt track, which she cannot use.  Maria has been going to practices for a week and a half now.  She is really enjoying it and getting really fast in her racing chair and her everyday chair!  She has also been extra tired and grumpy as a result (which seems to be typical for a lot of kids involved in after school activities).  So far things are going well....not perfect.  I'm deciding which battles need fighting and which don't....not sure how the season will end up at this point.

Maria also has been told by her PT that she needs to be walking more than in her chair.  This is wonderful news, but she wasn't overly thrilled about it because she knows it means more work for her. It is hard to believe that yesterday marked one year since her 15 hour surgery where her cord was untethered and repaired and tomorrow will mark one year from her 13 hour spinal fusion surgery.  We were in a completely different place last year....I'm glad that we are through that time and Maria is regaining skills....although she still has several more to gain before she is as independent as she once was.  I know we will get there....until that happens I get to be a track mom and cheer her on.


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